![]() I was actually petrified of the horses when I began but I guess there is a real adrenaline rush doing something you’re afraid to do and it has spiraled from there. My younger sister was dying to try horse riding and my mum thought it would be good if the two of us went, and that is how I started. What made you choose this? In a lot of ways, I fell into horse riding. ![]() I started aiming towards the Paralympics and getting serious about my training when I was 19. When did you start this? I started horse riding when I was 10. I am a para equestrian athlete and I represented Ireland at the Paralympics twice and I am working towards representing Ireland in Paris in 2024 ![]() Tell us a little more about you: I am a normal woman who wants to live my life fully with no regrets. What is the first thing you want to do when a cure/treatment for FA is found? Tell everyone. What is the best advice YOU could give to a person who has been newly diagnosed with FA: "Welcome to the group and you are a fighter." What piece of advice that someone with FA has given you that encourages and inspires you? You are beautiful with it. What is a favorite motivational quote of yours: "You are special to get FA and a fighter." What is one way living with FA has POSITIVELY affected your life: Never give up. When FA gets you down, what do you think/do to feel better: When FA gets me down, I count pros of being disabled and still able to do things in my way with not much expectations. What is a good trick to make daily life easier: Be confident in your flaws and accept them with a positive attitude. My exercise routine is climbing stairs and holding bars.ĭo you have any hobbies or special interests: Cooking, writing articles. What do you like to do to stay active and what type of exercises work for you to stay strong? Doing housework, working, sitting in a wheelchair. I transitioned from walking to walker to wheelchair to prevent accidents, to be productive, high functioning, to be less of a burden to others and for independence. I got FA diagnosed on paper in 2019.Īre there any others with FA in your family: No, I am the first.ĭescribe your transition from walking to walker/wheelchair. I was told I might have the disease after telling my condition was getting worse, that I can't even do my daily activities normally and I was getting too clumsy and twisted my ankle and went to hospital. How long have you known you are living with FA 2013. What's a typical day for you? Stay home with parent. We hope that you will be inspired, uplifted and encouraged through the FARA Ambassador Blog!Įducation: I am a business student, but I want to be a activist. The blog features posts about FARA events, articles about living with FA, spotlights on individuals throughout the FA community, weekly interviews to “Meet the Community,” and more. The Ambassador Blog This blog is a vehicle for the voice of the FARA Ambassador Program and features posts from Program participants and friends from the FA community on a wide range of topics. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: This email address is being protected from spambots. The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. FARA Ambassador Program Mission Statement: We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. ![]() Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. The Ambassadors are a service team within the FARA organization. FARA Ambassador Program FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for treatments and a cure.
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